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Monitoring the rare diseases landscape

Thought Leadership

The UK’s Rare Disease Research Landscape Steering Group – a working group representing government, industry, and charities – needed to better understand the current rare disease research landscape in the UK and provide an evidence base to support future policymaking decisions on rare diseases. To capture the full picture the researchers needed data for all rare disease research, whether funded by government, charities, or industry.

Read the case study to see how the UK’s Rare Disease Research Landscape Steering Group was able to gain detailed insights and data that allowed them to define their future direction.