Retinitis Pigmentosa – Epidemiology – Mature Markets Data
DRG Epidemiology’s coverage of RP comprises epidemiological estimates of key patient populations across the major mature pharmaceutical markets (the United States, France, Germany, Italy, Spain, the United Kingdom and Japan). We report the diagnosed prevalence of RP for each country, as well as annualized case counts projected to the national population.
Most patient populations are forecast over a period of 20 years for the major mature pharmaceutical markets of the United States, Europe and Japan in this report.
DRG Epidemiology’s RP forecast will answer the following questions:
Of all people diagnosed with RP, how many in each countryacross the major mature pharmaceutical markets are drug-treated?
How will demographic trends, such as population aging and improving life expectancy, affect the epidemiology of RP over the forecast period?
All forecast data are available on the DRG Insights Platform in tabular format, with options to download to MS Excel. All populations are accompanied by a comprehensive description of the methods and data sources used, with hyperlinks to external sources. A summary evidence table generated as part of our systematic review of the epidemiological literature is also provided for full transparency into research and methods.
DRG Epidemiology provides at least ten years of forecast data for the following RP patient populations:
Diagnosed Prevalent Cases of Inherited Retinal Dystrophy
Diagnosed Prevalent Cases of RetinitisPigmentosa
Drug-Treated Prevalent Cases of RetinitisPigmentosa
Clinical Subtypes of RetinitisPigmentosa
Diagnosed Prevalent Cases of Usher Syndrome
Diagnosed Prevalent Cases of Bardet-Biedl Syndrome
Diagnosed Prevalent Cases with RPE65Mutation
Diagnosed Prevalent Cases of Leber'sCongenital Amaurosis
Retinitis Pigmentosa - Epidemiology - Mature Markets Data
Introduction
Key Findings
Key Updates
Diagnosed Prevalence of Retinitis Pigmentosa per 100,000 People of All Ages in 2021 and 2041
Relative Sizes of the Factors Contributing to the Trend in Diagnosed Prevalent Cases of Retinitis Pigmentosa over the Next 20 Yearsttttttttt
Analysis of Diagnosed Prevalent Cases by Drug-Treated Status
Analysis of Diagnosed Prevalent Cases of non-syndromic Retinitis Pigmentosa by Inheritance Pattern
Epidemiology Data
Methods
Diagnosed Prevalent Cases of Inherited Retinal Dystrophy
Diagnosed Prevalent Cases of Retinitis Pigmentosa
Drug-Treated Prevalent Cases of Retinitis Pigmentosa
Diagnosed Prevalent Cases of Retinitis Pigmentosa by Clinical Subtype
Diagnosed Prevalent Cases of Usher Syndrome
Diagnosed Prevalent Cases of Bardet-Biedl Syndrome
Diagnosed Prevalent Cases of RPE65-Associated Retinitis Pigmentosa
Drug-Treatable Prevalent Cases of RPE65-Associated Retinitis Pigmentosa
Diagnosed Prevalent Cases of X-Linked Retinitis Pigmentosa
Diagnosed Prevalent Cases of Leber Congenital Amaurosis
Diagnosed Prevalent Cases of RPE65-Associated Leber Congenital Amaurosis
Drug-Treatable Prevalent Cases of RPE65-Associated Leber Congenital Amaurosis
Diagnosed Prevalent Cases of Choroideremia
Drug-Treatable Prevalent Cases of Choroideremia
Reference Materials
Literature Review
Studies Included in the Analysis of Retinitis Pigmentosa
Studies Excluded from the Analysis of Retinitis Pigmentosa
Risk/Protective Factors
Risk/Protective Factors for Retinitis Pigmentosa
Bibliography
Abbreviations table
Glossary
Jagriti Prasad
Jagriti Prasad, M.P.H.,is an associate epidemiologist at Clarivate. Previously, she worked on a research project exploring trends in a rare cancer and its subtype using data spanning 44 years in the largest cancer registry of northern England (NRYPMDR). She obtained her M.P.H. from Newcastle University (U.K.) and her B.D.S. from Manipal University (India).
Mudasir Khan, M.P.H.
Mudasir Khan, M.P.H., is a senior epidemiologist at Clarivate. His areas of expertise are oncology and psychiatry diseases. He holds a master’s degree in public health from the Tata Institute of Social Sciences in Mumbai.