Rare disease patient journey framework

Improving the rare disease patient experience and patient outcomes through integrated, holistic patient journey analytics

Jeff Wray
Solution design lead
John Jaeger
DRG Consulting

Thank you for your interest in our latest webinar. If you missed the webinar or would like to revisit key sections, please complete the form.

In this webinar, our experts shared a robust framework for building a holistic, highly-accurate view of the patient experience for rare diseases, along with tips on how to prioritize strategies, engagement and support activities that will drive the greatest value.

Topics covered:

Market trends driving patient journey transformation

  • Impact of COVID-19 on patient experience
  • Greater availability of diverse data sets
  • The need to invest in patient journey work earlier in the clinical process

Integrated patient journey framework

  • One journey, many lenses: clinical, access, emotional and behavioral
  • Real life examples and applications at different points of the lifecycle